Imagine Moving Forward

| Linda Huguelet

I start every day before work with a 2.5 mile walk.  And, every day I look down at the IMF bracelet around my wrist that reads “Imagine Moving Forward.”   I’m so grateful for the advances in myeloma treatments that enable me to continue working and to lead a pretty active, normal lifestyle. Since my diagnosis […]

First-timer at ASH: Excited to Share With You

| Carlene Pratt

Each year in December, ASH Annual Meeting and Exposition brings hematologists from all over the world together, creating a forum to discuss and share critical issues in hematology today. This will be my first attendance to the American Society of Hematology 57th Annual Meeting and Exposition. I’ve been told that nearly 25,000 clinicians, doctors, scientists, […]

Teaching You to Become Your Own Best Patient Advocate

| Jack Aiello

I’m off to Orlando, site of this year’s American Society of Hematology (ASH) conference. ASH is all about blood cancers (leukemia, lymphoma, multiple myeloma) and there are nearly 800 posters presented on myeloma alone. I’m so grateful to the International Myeloma Foundation (IMF) and their sponsors for sending me, and I look forward to blogging […]

The very first blog of my life

| John Auerbacher

My life as a myeloma patient has so far been fairly private. This blog may change all that. I am good with it. Now that I am an IMF group leader (rather than a proud substitute for Mike Katz when he was traveling), I feel a greater responsibility to other patients. I will allocate a […]

Tick-tock, tick-tock…

| Teresa Miceli

The clock is ticking . . . the time nears for the 57th annual American Society of Hematology (ASH) meeting. Again this year, I am privileged to return as part of the International Myeloma Foundation (IMF) Support Group Leaders (SGL) program as an SGL representative and nurse liaison. With this honor comes preparation to make […]

Looking Ahead to ASH 2015

| Anne Pacowta

As I prepare to attend ASH for a second time, so much flows through my mind. What new therapies will be discussed? What treatments are in clinical trials? How close are we to a cure? Twelve years ago, when my husband was diagnosed, thalidomide and dexamethasone were the standard of treatment. I wonder, “How far […]

Converting Fear to Realistic and Actionable Hope

| Yelak Biru

In his pre-2014 IMF ASH write-up, Dr. Durie said, “This year, there doesn’t appear to be the sort of news that will reset the needle in the myeloma landscape.” However, last year, Dr. Keith Stewart’s ASPIRE presentation about Progression Free Survival (PFS) of 26+ months (vs. 17 with Rd) was one of the main highlights […]

Coordinating Doses of Daily Hope

| Robin Tuohy

For more than five decades, the ASH annual meeting has served as the premier event for scientific exchange in the field of hematology. Today, this meeting attracts more than 20,000 attendees from all over the world. Since 2006, the IMF has provided a unique opportunity for support group leaders to attend ASH.  This year we […]

15-Year Myeloma Survivor Reports from ASH

| Michael Tuohy

When I was diagnosed in 2000, only a handful of treatment options were available. We used our options sparingly, hoping to keep something in our back pocket for when we needed it. Today is a very different story. We have treatment options that use various types of drugs that can work alone and in combination […]

Anticipating the Power and Importance of ASH15

| Jim Omel

ASH (American Society of Hematology) 57th Annual Meeting and Exposition brings together the brightest minds in hematology to share new knowledge, ideas, and trial results. Because topics and revelations at ASH affect literally hundreds of thousands of patients around the world, the importance of this yearly event cannot be overstated. To give ASH proper perspective, […]