When you were younger, how many times did you hear that at the pool or dockside at your favorite lake? I have been thinking about our newly diagnosed patients, caregivers, families, and friends. It seems that when the myeloma diagnosis came along, you “Jumped in” and tried to learn as much as possible about this […]
As much as things have changed, they have remained the same
The 57th American Society of Hematology (ASH) conference started with two important pre meetings: the Global Myeloma Action Network and the International Myeloma Satellite Symposium. The Global Myeloma Action Network or GMAN, is the advocacy arm of the International Myeloma Foundation and its mission is to increase availability and access of myeloma treatment to all […]
Research Grant Reception
The Research Grant Award Reception last night was very inspirational and enlightening. I loved hearing each of the patients tell their own personal stories about their initial diagnosis and how they live with multiple myeloma. As a patient myself, I know how lost and alone you can feel with the initial diagnosis. Each one of […]
Day 1 at ASH 2015
Today was a very long but exciting day at ASH. It began with a 6 am working breakfast of the IMF’s International Myeloma Working Group (IMWG) that consists of nearly 200 myeloma experts from around the world. From 2003-2015, IMWG has produced 22 written Guidelines covering various treatment topics and has 7 more in review: […]